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A Chat with Janet Odio Okolo: A Mother’s Journey Raising a Child with Down Syndrome

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Down syndrome: It’s a congenital condition characterized by a distinctive pattern of physical characteristics including a flattened skull, pronounced folds of skin in the inner corners of the eyes, large tongue, and short stature, and by some degree of limitation of intellectual ability and social and practical skills. It usually arises from a defect involving chromosome. Above definition succinctly describes what Janet Odio Okolo had to go through to sustain her daughter. In this chat she narrated her experience to naijablitznews Associate Editor, Gloria Ikibah, excerpts. 
 
Tell us a bit about yourself and what you do?
My name is Janet Odio Okolo. I often introduce myself as a proud mother of a 13-year-old girl, Isioma, who lives with Down syndrome. I call her my “star girl.”  
Professionally, I’m into catering and equipment rentals. I provide catering equipment like plates, cutlery, chafing dishes, and more to other caterers. Alongside that, I run a few side businesses to support my family.
 
 
What has been the most rewarding part of raising a child with Down syndrome? And how has it impacted your life and perspective?
 
Raising Isioma has helped me discover parts of myself I didn’t know existed—patience, empathy, selflessness.  
 
She has taught me to see people beyond the surface, to understand others deeply and kindly. These qualities have added great value to my life and relationships. It’s been a journey of self-discovery, and I am better for it.
 
 
There are often different perceptions about Down syndrome. What’s yours?
 
I had prior knowledge about Down syndrome before Isioma was born, so it wasn’t a total shock. People have different opinions—some based on facts, others rooted in myths.  
 
But for me, Isioma is God’s creation. I didn’t create her, but she came into my life with purpose. I embraced her fully, and that acceptance has made the journey smoother.
 
 
Can you share a particular challenge you’ve faced raising Isioma and how you overcame it?
 
There are challenges, no doubt, but I’ve chosen to see them as opportunities for growth. One that stands out is watching her peers, cousins, friends progress faster. At 2 or 3 years old, they were on the same level, but over time, many of them moved ahead academically and developmentally.  
 
It used to bother me. Some of them are now in secondary school or boarding houses, while Isioma is still in primary school. But I remind myself that every child moves at their own pace. With the right support, Isioma will get there, and she’s already doing very well.
 
 
How do you think society can better support and include individuals with Down syndrome?
 
Support must go beyond the family, it must come from the entire society. These children live in communities, go to school, attend church, and access healthcare.  
 
In schools, there should be inclusive programs tailored to their pace. Let them participate in games, cultural days, and other activities. Don’t exclude them because they “can’t dance” or “can’t sing.” Involve them.
 
In the neighbourhood, encourage inclusion during play. For instance, a friend told me her son who also has Down syndrome is often excluded from football because he scores own goals. But I say: be patient, teach him the rules, guide him. That’s what inclusion looks like.
 
In churches, let’s involve them in prayers, praise, and worship. Make them feel seen and valued.  
 
Hospitals should be more patient and friendly with these children. That environment should make them feel safe and open.  
 
And for family members and friends support can be as simple as offering to look after the child for a weekend so the parent can rest. That kind of emotional and practical support goes a long way.
 
 
What are your hopes and dreams for Isioma? What steps are you taking to help her achieve them?
 
Oh, I have big dreams for her! And she has dreams too. For example, Isioma loves the runway, she loves to strut like a model.  
 
So, I’m investing in that. I got her a coach to help her build on this interest. My goal is for her to be independent one day, to earn a living through something she enjoys.  
 
Parents need to pay attention, observe what their children love, then build on it. Some want to bake, sing, sew, or dance. Equip them with skills. That’s what I’m doing with Isioma. Even if I’m not around tomorrow, I want her to be confident and self-sufficient.
 
 
What advice would you give to parents who’ve just received a Down syndrome diagnosis for their child?
 
The first step is acceptance. Don’t live in denial. Don’t say, “God forbid” or “I reject it.” That only delays the journey to support.  
 
I remember when Isioma was about six months old, I took her to a popular hospital. The pediatrician just looked at her and bluntly said, “This child has Down syndrome.” She didn’t offer any emotional support, she just dismissed me. That experience hurts.   
 
But instead of giving up, I started researching. I saw a lot online that was scary and discouraging, so I decided to create my own path for her.  
 
To new parents: it’s not a death sentence. With love, care, and professional support, your child can thrive. Don’t fall for superstitions, stigmatization, or spiritual manipulation. Focus on solutions. Be your child’s biggest cheerleader, and others will follow your lead.
 
 
How supportive are your other children?
 
They’re very supportive, although due to age differences and school schedules, they weren’t always around. But whenever they’re home, they show her so much love. They treat her like their little queen. The bond is strong, even in limited time.
 
 
What are your expectations from the government and society at large?
 
There are government policies for people with special needs, but the problem is implementation. These policies often remain on paper.  
 
We need action. Especially in healthcare, many of these children have underlying conditions that require consistent medical attention. Parents, especially indigent ones, can’t always afford this.
 
Recently, I saw a young girl with Down syndrome at a fish market, begging. She looked unkempt. I was with Isioma, and people noticed the connection. I tried to reach out to the girl’s mother to offer help even if not financial, at least advice and direction.  
 
Children like that are vulnerable to abuse, exploitation, and neglect. We need the government to provide safe spaces, education, healthcare, and skills training, especially for families who can’t afford it.
 
 
Finally, any last words to society about children with Down syndrome?
 
They are not a mistake. They are not a burden. They are people with potential just like every other child.  
 
Let’s remove the stigma. Let’s embrace inclusion. Let’s create a world where they are seen, heard, and loved for who they are.
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2027: Rainbow Coalition Signals Fresh Political Realignment in Nigeria — Sokoto PDP Guber Candidate

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The Peoples Democratic Party (PDP) governorship candidate in Sokoto State, Abubakar Sokoto, has described the emerging Rainbow Coalition as another chapter in Nigeria’s long history of political alliances and realignments.

Sokoto, in a statement issued in Sokoto on Tuesday, said political coalitions had remained a recurring feature of Nigeria’s electoral history, with parties and political groups often coming together to pursue shared political objectives.

According to him, while the names, personalities, circumstances and goals behind such alliances may change, political realignment remains an established part of the country’s democratic process.

He cited the 1999 AD-APP joint presidential ticket of Olu Falae and Umaru Shinkafi as one of the notable examples of political cooperation in Nigeria.

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He also recalled the Coalition of Progressive Political Parties ahead of the 2015 general elections, as well as the merger involving the Action Congress of Nigeria (ACN), Congress for Progressive Change (CPC) and All Nigeria Peoples Party (ANPP), which eventually led to the formation of the All Progressives Congress (APC).

“The greatest lesson from these experiences is that political coalitions are about people as much as they are about parties,” he said.

On the latest political realignment, Sokoto noted that the Minister of the Federal Capital Territory (FCT), Nyesom Wike, had described the Rainbow Coalition as a multi-party platform mobilising support for President Bola Tinubu’s 2027 re-election bid.

He added that Wike had also maintained that the coalition was not an APC structure.

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Sokoto said concerns reportedly expressed by some APC governors over the emerging coalition should be viewed within the broader context of Nigeria’s history of political alliances and realignments.

He urged APC governors and other party leaders to adopt what he described as a pragmatic approach to the developing political configuration ahead of the 2027 elections.

The PDP candidate also called on Nigerians to support efforts aimed at ensuring that the 2027 general elections are free, fair and credible.

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Niger Miners’ Deaths: ‘Anyone Who Tampers With Evidence Will Face Full Wrath of Law’ — Tunji-Ojo

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The Federal Government has warned that anyone who attempts to destroy or conceal evidence, intimidate witnesses or obstruct investigations into the deaths of 37 suspected illegal miners in Niger State will face prosecution.

Minister of Interior, Olubunmi Tunji-Ojo, issued the warning on Tuesday in Abuja while inaugurating a 10-member independent investigative committee set up to establish the circumstances surrounding the deaths of the detainees in the custody of the Nigeria Security and Civil Defence Corps (NSCDC).

The 37 detainees died on September 17, days after they were arrested during NSCDC operations against suspected illegal mining in the M.I. Wushishi and Lukoto areas of Niger State on September 15 and 16.

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The circumstances and actual cause of the deaths remain under investigations.

Speaking at the inauguration of the panel, Tunji-Ojo directed the NSCDC leadership and all officers linked to the incident to cooperate fully with investigators and ensure that all relevant records and material evidence are preserved.

“All records and material evidence connected to this incident, I have directed that they must be preserved and made available,” the minister said.

He added: “Any attempt by anybody to destroy or conceal evidence, intimidate witnesses or obstruct this investigation will be treated as a serious offence against the nation and it will not be tolerated.
“If it ever happens, I give you my word, the full hammer of the law will descend on such an individual.”

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‘We Owe Nigerians the Truth’
Tunji-Ojo said the Federal Government was determined to establish the truth and ensure accountability, regardless of the status of anyone found culpable.
“To Nigerians, I say this: we owe you the truth.

This committee will give you the truth. No officer, no matter how highly placed, or any individual will be shielded if found culpable,” he said.

The minister also appealed to the families of the deceased to remain calm, assuring them that the government would not abandon them.

“To the families who lost loved ones, I appeal for calm and patience. This government will not and will never abandon you,” he said.

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Tunji-Ojo charged the committee to conduct a thorough investigation and promised that its findings would not be ignored.

“I challenge you: let your antecedent speak when the report is submitted, and I assure you of one thing: this report will not be swept under the carpet,” he said.
He added that those found culpable would face the appropriate legal consequences.

“We will call a meeting like this; we will present the report, and whoever needs to be prosecuted will be prosecuted, and whoever needs to be dealt with in line with the law will be dealt with,” the minister said.

Panel to Determine Cause of Death, Responsibility

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The committee, chaired by retired Deputy Director-General of the Department of State Services (DSS), Jonathan Kure, is expected to establish the identities of the deceased and investigate the circumstances surrounding their arrest and detention.

It will also determine the cause and circumstances of the deaths, establish responsibility, complicity, negligence or misconduct, and recommend appropriate action, including compensation where applicable. The panel is also expected to recommend measures to prevent a recurrence.

The committee has two weeks to complete its investigation and submit its report to the Minister of Interior.

The NSCDC initially attributed the deaths to a suspected disease outbreak, but the official cause has not been established.

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The Federal Government has ordered a comprehensive investigation into the circumstances surrounding the deaths.

The incident has generated widespread public outrage, with survivors and relatives making allegations about the conditions in which the detainees were held. Reports have included claims of overcrowding and poor ventilation, as well as allegations that an unidentified substance was sprayed inside the cell. Those claims remain subject to investigation.

Following the incident, the Federal Government suspended the Niger State NSCDC Commandant, Suberu Siyaka Aniviye, along with 20 other officers pending the outcome of the investigation.

The NSCDC subsequently paraded the suspended commandant and other officers linked to the incident at its national headquarters in Sauka, Abuja, as the Corps presented preliminary findings to journalists.

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President Bola Tinubu had earlier ordered a full and transparent investigation, saying the government would not tolerate mass deaths arising from official negligence, dereliction of duty or failure by public officials to protect people placed in their care.

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Akpabio pays condolence visit to Bamanga Tukur family says he was a detribalised Nigerian(Photos)

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President of the Senate, Godswill Akpabio, has described the late Elderstatesman and former National Chairman of the Peoples Democratic Party(PDP) Alhaji Bamanga Tukur, as a detribalised Nigerian whose contributions to the country transcended ethnic and political boundaries.

Akpabio, who arrived Nigeria from Italy yesterday, stated this while on a condolence visit to the family of the late former governor of the defunct Gongola State on Tuesday. He described the late Tukur as “a detribalised Nigerian, great patriot and towering national figure whose contributions to the country transcended ethnic and political boundaries.”

A statement by his Special Assistant on Media, Jackson Udom, disclosed how Akpabio recalled his personal relationship with the late elder statesman, noting that Tukur had, among other engagements, chaired an event he attended in London in 2009.

“The late Tukur left behind a legacy of love, wisdom and service to the nation and would continue to serve as an example to younger politicians and Nigerians.”

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He expressed regret that Tukur was no longer alive to continue sharing his wealth of experience and wisdom, adding that his contributions to national development would remain memorable.

Akpabio also disclosed that the National Assembly would honour the late elder statesman on the floor of the Senate when it resumes, while urging Tukur’s children to continue in their father’s footsteps and uphold the values for which he was known.

Responding on behalf of the family, one of the deceased’s sons, Mahmoud Tukur, thanked the President of the Senate, his wife, Mrs Unoma Akpabio and his entourage for the condolence visit.

Mahmoud also expressed appreciation to President Bola Tinubu and Nigerians for honouring and remembering his father, who died at the age of 90 on Saturday, September 12, 2026.

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